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Patient
Community News
JTV feature - ME/CFS Awareness in Australia
This excellent TV segment was
featured on ABC (Australia's national public broadcast channel)
JTV (youth focused music program) at 11:30 pm Friday 11th May
2007.
Pediatric Case Definition for Myalgic Encephalomyelitis
and
Chronic Fatigue Syndrome
January 2007 - "The summary of symptoms in
Table 1 could be referenced by pediatricians, school nurses,
and even school teacher and staff responsible for Individual
Education Plan development and implementation. In addition, the
criteria list could be useful to the young person, parents or
other advocating for youth with ME/CFS in need of accommodations
since it would give legitimacy to the child's symptoms. The rapid,
accurate identification of cases of ME/CFS followed by
comprehensive and appropriate support and treatment might increase
chances of recovery for all children and adolescents with this
debilitating illness."
A Response and Appreciation of the Gibson Inquiry Report
Prof.
Malcolm Hooper, December 2006
"A note of caution concerns the general comments about the
work in the USA. Some of this is high quality and ground
breaking but there is also a powerful lobby that supports the
biopsychosocial/somatisation views so wholeheartedly and
misguidedly embraced by the UK medical fraternity and insurance
industries. Drs. Strauss and Reeves in the States endorse
this approach and advocate both CBT and GET.
The CDC toolkit
cannot be recommended whilst the CDC (Fukuda) research criteria
for ME/CFS are now known to be flawed, Kennedy, Spence et al 2004,
Jason et al, 2005, and need to be replaced by more specific and
focussed criteria such as the Canadian ones."
Gibson Inquiry Final Report
(November 26, 2006) "We
recommend that this condition be recognised as one which requires
an approach as important as heart disease or cancer. There
is no compelling evidence it is purely psychosocial. It is
an illness whose time has certainly come."
Campaigners have hailed a coroner's decision to record chronic
fatigue syndrome as a cause of death.
(June 2006) "The
Brighton and Hove coroner ruled on 13 June that Sophia Mirza, 32,
of Brighton, died from 'renal failure as a result of chronic
fatigue syndrome'."
After 6 years of medical abuse, Sophia Mirza, age 32, died of
severe M.E.
(May 2006)
"From Tuesday 22nd November, Sophia could not move an inch,
neither could she sleep. On Friday 25th she died. I did not cry. I
gave thanks that I had been able to keep my word that she would
never be locked-up in a mental hospital again." Sophia's
mother, Criona Wilson tells her heartrending story of her
daughter's 6 years of abuse by the medical and psychiatric
profession, and shares Sophia's autopsy reports.
Casey Fero, age 23, died suddenly of Chronic Fatigue Syndrome
(Sept.
2005)
"On July 4, 2005, sometime between 2:30 am when his mother kissed
him good night, and 6:30 am when his father came downstairs, Casey
Fero died in his sleep. His heart simply stopped." Read Mary
Schweitzer's compelling testimony at the September 2005
CFSAC
meeting.
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