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ME & CFS
Explained
More
resources for health care providers
Top 10 Tests for
Myalgic Encephalomyelitis & CFS Labeled Patients
Dr. Paul Cheney
writes:
"The worst cases
have both an MS-like and an AIDS-like clinical appearance. The
most difficult thing to treat is the severe pain. Most have abnormal neurologic
examinations. 80% of cases are unable to work or attend
school. We admit regularly to hospital with an inability to
care for self."
Read Dr. Cheney's
full testimony
before the FDA Scientific Advisory Committee.
"The belief that [ME] CFS is a
psychological illness
is the error of our time."
-Dr. Byron Hyde-
"All M.E. patients
as well as all chronic illness patients deserve a systematic and
total body investigation. No individual should go through life,
ill, disabled without knowing why he is ill. Simply offering a
label, whether M.E. or CFS, without
looking at the pathophysiology, is both unacceptable and
potentially dangerous both
for the patient and the patient’s physician."
-Dr. Byron Hyde-
A New and Simple Definition of Myalgic Encephalomyelitis
and a New Simple Definition of Chronic Fatigue Syndrome
&
A Brief History of Myalgic Encephalomyelitis
& An Irreverent History of Chronic Fatigue Syndrome
Invest in ME prepared this abridged version of
Dr. Byron Hyde's "little red booklet" he presented at the 2006
IiME Conference. An excellent brief summary for both doctors
and patients.
"In my experience, [ME/CFS] is one
of the most disabling disease that I care for, far exceeding HIV
disease except for the terminal stages."
-Dr. Daniel Peterson-
"I take great issue with the current
recommendations that no additional testing should ever be done.
I believe there are indications for more advanced testing."
-Dr. Daniel Peterson-
"Many patients with a diagnosis of
CFS today have non-diagnosed major diseases. These patients
warp any statistical or scientific examination of the CFS patient.
Most of the patients I have seen from Canada, the United States,
or from the United Kingdom with gradual onset CFS illness have
non-diagnosed major medical illness or anomaly."
-Dr. Byron Hyde-
The Complexities of Diagnosis
Dr. Hyde gives examples of patients
misdiagnosed with CFS. Read
a brief summary.
"Clearly, individuals who are
extremely sick with an illness will feel even more alienated and
demoralized if those who are responsible for helping them are
insensitive to their needs."
-Dr.
Leonard Jason-
"The patient's visible symptoms are
sometimes a better barometer that something is wrong than the best
tests that a scientist can devise."
-Dr. Byron Hyde-
Issues Involving the Name Change Recommendations
Leonard A. Jason, Nicole Porter,
Jennifer Okasinski, & Mary Benton -
DePaul University
"Researchers and clinicians need to
be aware of the strong sentiments that patients have
for [the name, definition and classification of] Myalgic Encephalomyelitis, which is historically correct
(Ramsay, 1981) and has been used internationally (Hyde, Goldstein,
& Levine, 1992)."
CFS is Low
Output Heart Failure Secondary to Mitochondrial Failure
June 2006
"I think this is one of the most important handouts I have ever
produced in terms of my understanding of CFS and what to do in
order to recover!"
Dr. Sarah Myhill describes ME/CFS
and her treatment protocols.
Download a printable PDF version of
the Jill McLaughlin's16 page guidebook,
What is ME?
What is CFS? An Informational Guidebook for Doctors and Patients.
Download the printable pamphlet,
Immune
Dysfunction in ME/CFS: A brief overview for patients and families.
(Based on
seminars by Dr. Paul Cheney)
"I have treated more than 2,000 AIDS
and CFS patients in my career. And the CFS patients are MORE sick
and MORE disabled every single day than my AIDS patients are,
except for the last two months of life!"
-Dr. Marc Loveless-
who testified under oath before Congress in 1995.
"We need to
educate health care professional about this illness and keep at it
until every doctor, nurse practitioner and physician assistant can
quote the diagnostic criteria and treatment strategies."
-Dr. Nancy Klimas-
"While it is a
part of the discipline of differential diagnosis to exclude
alternate explanations for a patient’s symptoms, it is also
important to recognize the characteristic features of ME/CFS."
The
Overview of the Canadian Consensus Document
for ME/CFS and the full text
Canadian Consensus Document for ME/CFS
have detailed symptom
checklists, symptom severity and prevalence charts, and other
tools for diagnosing and assessing function.
CFS is a Symptom of Mitochondrial Failure
Dr. Sarah Myhill describes ME/CFS
and her treatment protocols.
Online Medical Dictionary |
