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About the NAME-US.org  Banner Images

The National Alliance for Myalgic Encephalomyelitis has renewed its web page banners for 2011.  NAME-US.org was created in 2006 by long-time, severely affected patients from coast to coast reaching out to each other in solidarity, holding onto life, supporting one another despite adversity and isolation.  In the process, we also reached out to the ME and CFS research community and patient advocates for their support in bringing the realities of the severity of ME and CFS to light within the general population, to the US Congress, and to the medical community through this website and patient advocacy.  Researchers long dedicated to this field have been our greatest hope; we thank them for the information that fills most of the pages of this website.  We're grateful they have persevered for decades against all odds, just as many stalwart patient advocates have done.  As our own health rapidly deteriorates, we hold firmly onto their grasp of this disease on a complex scientific scale as well as their compassion for the devastating affects on each individual patient.

The lack of identity of the human figures in our banner images, coupled with the bold acronym NAME, have been a salient call to restore this disease's medically correct designation and provide clear identity to a million individuals in the US who suffer, most still unidentified, with this disease.  Most patients aware of its history will agree that the entity of "CFS" and its definition were manufactured when M.E.'s identity was mistaken, mostly ignored, and even ridiculed by U.S. government officials during several M.E. outbreaks in the mid 1980s.  This discrimination has left the faces of most patients invisible, long hidden from society.  This discrimination has forced patients into seclusion and poverty as much as the disease itself has.  This discrimination continues.  Most patients are still often maligned rather than given the validation, much needed medical care, compassion, and disability benefits deserved of any person with a painful chronic progressive disease in a civilized society.  As Professor Malcolm Hooper (UK), Dr. Leonard Jason (US), and many other ME/CFS experts openly agree, the proper designation and definition of this disease need to be restored and updated to reflect the most recent advances in scientific knowledge, as well as its true serious nature, to help rid patients and researchers alike of the stigma and minimalization attached to the "F" word in "CFS."  (On our Home page, Dr. John Greensmith eloquently explains why this is so crucial.)  The time is long past due to appropriately NAME-US!  Our new banners reflect our belief that the time is nearly at hand.

 
 

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